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@article{Fernandes:2019:10.2196/14135,
author = {Fernandes, Neves Soares AL and Poovendran, D and Freise, L and Ghafur, S and Flott, K and Darzi, A and Mayer, E},
doi = {10.2196/14135},
journal = {Journal of Medical Internet Research},
title = {Healthcare professionals’ perspectives on the secondary use of health records to improve quality and safety of care: a qualitative study in England},
url = {http://dx.doi.org/10.2196/14135},
volume = {21},
year = {2019}
}
TY - JOUR
AB - Background: Healthcare professionals (HCP) are often patients’ first point of contact in what concerns the communication of the purposes, benefits, and risks of sharing electronic health records (EHR) for non-direct care purposes. Their engagement is fundamental to ensure patients’ buy-in and a successful implementation of healthcare data sharing schemes. However, their views on this subject are seldom evaluated. Objective: To explore HCP’ perspectives on the secondary uses of healthcare data in England. Specifically, we aimed to assess a) their knowledge on its purposes and b) the main concerns about data sharing processes.Methods: A total of 30 interviews were conducted between the 27th March and 7th April 2017 using an online interview platform, and following a topic guide with open-ended questions. The participants represented a variety of geographic locations across England (London, West Midlands, East of England, North East, Yorkshire and the Humber), covering both primary and secondary care services. The transcripts were compiled verbatim and systematically reviewed by two independent reviewers, using the framework analysis method to identify emerging themes.Results: HCP were knowledgeable about the possible secondary uses of data and highlighted its importance for 1) patient profiling and tailored care, 2) research, 3) quality assurance, 4) public health, and 5) service delivery planning purposes. Main concerns towards data sharing included 1) data accuracy, 2) patients’ willingness to share their records, 3) challenges on obtaining free and informed consent, 4) data security, 5) lack of adequacy / understanding of current policies, and 6) potential patient exposure and exploitation.Conclusions: These results suggest a high level of HCP understanding about the purposes of data sharing for secondary purposes, however, some concerns still remain. A better understanding of HCP’ knowledge and concerns could inform national communica
AU - Fernandes,Neves Soares AL
AU - Poovendran,D
AU - Freise,L
AU - Ghafur,S
AU - Flott,K
AU - Darzi,A
AU - Mayer,E
DO - 10.2196/14135
PY - 2019///
SN - 1438-8871
TI - Healthcare professionals’ perspectives on the secondary use of health records to improve quality and safety of care: a qualitative study in England
T2 - Journal of Medical Internet Research
UR - http://dx.doi.org/10.2196/14135
UR - https://preprints.jmir.org/preprint/14135/accepted
UR - http://hdl.handle.net/10044/1/72233
VL - 21
ER -
