For parents and carers

The National Neonatal Research Database Information collected by regular staff on the neonatal unit is used to create a National Neonatal Research Database (NNRD). The information within the NNRD is called the Neonatal Data Set. This information is used to support research, surveys, quality improvement programmes and management reports aiming to improve newborn care and health outcomes. Any use of this information for research requires approval from a National Research Ethics Committee. No details that might identify you or your baby would be revealed. The NNRD is created and held at the Neonatal Data Analysis Unit (NDAU) where research projects are carried out. These include linkage studies with other sets of data such as hospital admission statistics (HES) and mortality data sourced from the public body NHS Digital. Data from 2006-2007 onwards are held on the database.

The National Neonatal Research Database Privacy Notice

Why your baby's data are important (pdf)

The National Neonatal Research Database further information on the General Data Protection Regulations (GDPR).