People living with lifelong conditions (including HIV) have been affected by disruptions to their diagnosis, treatment and care during the COVID-19 pandemic. In the UK, face-to-face consultations have been adapted to take place over the phone and some people living with HIV mistakenly received government guidance advising them to shield at the start of lockdown.
We aim to explore COVID-19 experiences among people living with HIV as well as HIV clinical- and community-based workers and volunteers. This work has been in collaboration with Positively UK[1]
Our project has involved a number of stages and has generated several outputs:
[1] Positively UK are a peer-led organisation that offers a holistic approach and specialised services to improve the health and wellbeing of people living with HIV.
Why Co-Production? Reflections from our study
A film by Imperial College London in collaboration with Positively UK, about participatory approaches in HIV research. Film-maker: Ed Rolfe.
Project Outputs
Project outputs
- Publications, reports and peer research training resource
- Presentations, workshops, podcasts and events
Project information
If you’re interested in finding out more about this work, please contact the study co-ordinator, Vas Papageorgiou (vasiliki.papageorgiou17@imperial.ac.uk)
Please note - this work feeds into a larger doctoral research project (using the 2017 Positive Voices survey data) looking to explore the impact of social determinants (e.g. housing, employment, income etc.) on the health and wellbeing of people living with HIV. This doctoral research project is in collaboration with colleagues based in the HIV Section at the UK Health Security Agency (previously Public Health England).
Contact us
PERC Director and Co-Founder
Prof. Helen Ward
h.ward@imperial.ac.uk
For enquiries about public involvement in research and research more generally, please email:
publicinvolvement@imperial.ac.uk
Read our blog
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- Public engagement and involvement at the Cardiomyopathy UK conference: When researchers and the public meet
- Why did nobody ask us?! Reflections and findings from co-produced research into children’s vaccine uptake.
- Three key takeaways from our participation in the Research Engagement Network (REN) community roadshows
- You and Your Health Data: Results of our Great Exhibition Road Festival activity
